Aah to be almost 3
What a week. I’m putting the aggressive emotions down to the supermoon as all the other kiddies seem to be suffering simular, so hopefully it’s all up from here. It may well be coincidental and a load of crap but… Read more ›
Invitation to Play : Scented Snake Playdough
Chops came in to this snake on a mint and chive bed this morning. He’s got beads for eyes and scales down his back. I chose to make blue playdough (using a no-bake recipe) because our Audiology lady comes to… Read more ›
2 weeks after Gastrostomy
Our second week hasn’t been so great. Projectile vomiting, infection and a trip back to Southampton hospital to have stitches taken out early. The undressed wound was leaking and weeping a lot and getting more red, then we were getting… Read more ›
1 Week After Gastrostomy
It’s been one week since the operation and the wound, although less red than two days ago, is leaking a lot, mostly clear fluid but some curdy milk and some yellow/white gunk coming from the site. W’s reflux has increased… Read more ›
3 Days Post Gastrostomy
Tough day today, W is clearly still I in pain but the worst thing is that she also has reflux! She didn’t have very bad reflux before, not primary reflux anyway, but now it’s after each feed. Feeding isn’t so… Read more ›
The day of Gastrostomy
I’m sat waiting to go and get my baby from recovery, her surgery went well and she is now minus one nasalgastric tube! It’s horrible not being with her and although it’s all been matter of fact for us, we’ve… Read more ›
Poem about having a sick baby
A little poem just came into my head about having a baby who isn’t born healthy. When a baby is born, it’s a celebration; Time for smiling, crying, full of elation. But when baby’s born poorly, things go unsaid; People… Read more ›
Day Out with a Disabled Child
It was a toe dipped in the water really, W is only 9 months old but we were out of our comfort zone for the first time and at times felt like we were on show. I know it’s only… Read more ›
Great British Seaside in the Garden
We were supposed to be travelling to the North East this week for a good friend’s wedding, the plan was to split the journey into three or more chunks of driving, staying overnight at my sister’s on the way up… Read more ›
Global Developmental Improvement
Those are the words you want to hear at a clinical checkup! W is 8 months old, now gaining weight well and most importantly giving us the occasional beautiful whisper of a smile, she smiled for her paediatrician who was… Read more ›