Spring is about to Sproing
The daffodils are out in the garden and today we met friends at the park after school and the sun was shining! It got pretty cold pretty quickly but it really felt like Spring was truly on it’s way then… Read more ›
Mother’s Day
Since I was around 26 and started trying to conceive a child of our own, Mother’s day took on a totally different perspective. After 5 years trying for a baby unsuccessfully, Mother’s Day for me had become one of the… Read more ›
Respite
We’ve just come home from our second respite weekend as a family to the Children’s Hospice, Shooting Star Chase at Christopher’s. The deal is, Willow has her own room downstairs and we have family accommodation upstairs. The team look after… Read more ›
Wheelchair Tutu
Willow was up being sick in the night so we needed something calm to occupy us at home this morning, so we made a tutu that she can wear comfortably in her chair! I bought spools of tuille off eBay… Read more ›
A Year Missed
It’s been almost a year since I last blogged, A YEAR! It’s been a bit busy, so do excuse me, I’ve been trying to focus on life and living it. That said, a year is pretty poor. I’ve thought of… Read more ›
Breakfast blends
This page will be updated with breakfast blends for tubies on blended diet as we log them. 1/3 banana (31cal, 0.1g fat) 1 tbsp peanut butter (94cal, 8g fat) 1 tbsp hemp oil (120cal, 14g fat) 30g multi grain flakes… Read more ›
Special Needs Family Participation
This week our family was turned upside down again, in a very good way. For the first time, Willow has been able to join in with some everyday activities, thanks to two different seats arriving, the Firefly GoTo seat support… Read more ›
Lunch blend C
Nutritional values (kcal, fat, sugar, protein, calcium, fibre, carbohydrate) 65g quinoa (uncooked) : 239, 4, , 9.2, 30.6, 4.6, 41.7 400ml organic coconut milk Juice of 1 pomegranate 150g soft goat’s cheese 30g Cavelo Nero greens 95g carrot 1 pear… Read more ›
Being the parent of a sibling of a disabled child
One of the hardest things, if not the hardest thing, when Willow was born was the impact on Chops. It sounds a bit ridiculous given my other child was fighting for her life, but my life had revolved around my… Read more ›
In response to What I Would Tell You
I’m lying in bed with tears streaming. My beautiful, precious Willow is snoring in her sleepform mattress in her sidecar cot next to me, to a backing track of her feeding pump getting bonus milk into her as she sleeps,… Read more ›