Non-dairy milks are pretty poor when it comes to calories, so we make our own mixed nut milk, which sits in the fridge and used in blends when needed. The constitution varies as generally it’s handfuls of whichever nuts we… Read more ›
I can’t believe I’m doing this. I’m sitting next to my 5 year old’s bed as she struggles with secretions in her sleep, waking so regularly that there’s no point in me going to bed. This isn’t usual, this is… Read more ›
Every single day of Willow’s life we throw away a plastic bottle and a tube called a giving set. Every day. Every day the bottle goes into the recycling and the tube goes into the bin. I’ve often thought there… Read more ›
To celebrate Cerebral Palsy Awareness day I thought I would blog a day in our life, I’ll update this post through the day as I get chance. Today is my easiest day if all goes to plan as Willow goes… Read more ›
This page will be updated with breakfast blends for tubies on blended diet as we log them. 1/3 banana (31cal, 0.1g fat) 1 tbsp peanut butter (94cal, 8g fat) 1 tbsp hemp oil (120cal, 14g fat) 30g multi grain flakes… Read more ›
Nutritional values (kcal, fat, sugar, protein, calcium, fibre, carbohydrate) 65g quinoa (uncooked) : 239, 4, , 9.2, 30.6, 4.6, 41.7 400ml organic coconut milk Juice of 1 pomegranate 150g soft goat’s cheese 30g Cavelo Nero greens 95g carrot 1 pear… Read more ›
We came, we saw, we learnt, we had fun. As we said when we brought Chops to WOMAD aged 11 months, it’s too young to be part of anything but the experience is great for them. Something I hadn’t really… Read more ›
Our second week hasn’t been so great. Projectile vomiting, infection and a trip back to Southampton hospital to have stitches taken out early. The undressed wound was leaking and weeping a lot and getting more red, then we were getting… Read more ›
It’s been one week since the operation and the wound, although less red than two days ago, is leaking a lot, mostly clear fluid but some curdy milk and some yellow/white gunk coming from the site. W’s reflux has increased… Read more ›
Tough day today, W is clearly still I in pain but the worst thing is that she also has reflux! She didn’t have very bad reflux before, not primary reflux anyway, but now it’s after each feed. Feeding isn’t so… Read more ›