Cerebral Palsy Awareness
To celebrate Cerebral Palsy Awareness day I thought I would blog a day in our life, I’ll update this post through the day as I get chance. Today is my easiest day if all goes to plan as Willow goes… Read more ›
Category Archives: Special Needs
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Wheelchair Tutu
Willow was up being sick in the night so we needed something calm to occupy us at home this morning, so we made a tutu that she can wear comfortably in her chair! I bought spools of tuille off eBay… Read more ›
Breakfast blends
This page will be updated with breakfast blends for tubies on blended diet as we log them. 1/3 banana (31cal, 0.1g fat) 1 tbsp peanut butter (94cal, 8g fat) 1 tbsp hemp oil (120cal, 14g fat) 30g multi grain flakes… Read more ›
Special Needs Family Participation
This week our family was turned upside down again, in a very good way. For the first time, Willow has been able to join in with some everyday activities, thanks to two different seats arriving, the Firefly GoTo seat support… Read more ›
Lunch blend C
Nutritional values (kcal, fat, sugar, protein, calcium, fibre, carbohydrate) 65g quinoa (uncooked) : 239, 4, , 9.2, 30.6, 4.6, 41.7 400ml organic coconut milk Juice of 1 pomegranate 150g soft goat’s cheese 30g Cavelo Nero greens 95g carrot 1 pear… Read more ›
Being the parent of a sibling of a disabled child
One of the hardest things, if not the hardest thing, when Willow was born was the impact on Chops. It sounds a bit ridiculous given my other child was fighting for her life, but my life had revolved around my… Read more ›
In response to What I Would Tell You
I’m lying in bed with tears streaming. My beautiful, precious Willow is snoring in her sleepform mattress in her sidecar cot next to me, to a backing track of her feeding pump getting bonus milk into her as she sleeps,… Read more ›
Learning about emotions with a disabled sibling
It’s a difficult time when your child starts to learn about their own emotions, for everyone involved, exhausting for parents to keep calm and help guide their child and so confusing for the child. Happy, sad, angry, excited, we start… Read more ›
Reflecting on a year of being a special parent
This time last year I was probably having a moan about being heavily pregnant in the heat and waddling around after an almost 2 year old. We knew there were tough times ahead with a toddler and a newborn, no… Read more ›
First Festival as a Disabled Family
We came, we saw, we learnt, we had fun. As we said when we brought Chops to WOMAD aged 11 months, it’s too young to be part of anything but the experience is great for them. Something I hadn’t really… Read more ›