Recycling Challenge
Every single day of Willow’s life we throw away a plastic bottle and a tube called a giving set. Every day. Every day the bottle goes into the recycling and the tube goes into the bin. I’ve often thought there… Read more ›
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Travelling abroad with a child with complex needs
The list is enormous. I’m a list writer, I always have been, it’s how I organise myself. We’ve been away from home with W many times, its always pretty stressful making sure all her essentials are packed and with us.… Read more ›
Cerebral Palsy Awareness
To celebrate Cerebral Palsy Awareness day I thought I would blog a day in our life, I’ll update this post through the day as I get chance. Today is my easiest day if all goes to plan as Willow goes… Read more ›
Mother’s Day
Since I was around 26 and started trying to conceive a child of our own, Mother’s day took on a totally different perspective. After 5 years trying for a baby unsuccessfully, Mother’s Day for me had become one of the… Read more ›
Respite
We’ve just come home from our second respite weekend as a family to the Children’s Hospice, Shooting Star Chase at Christopher’s. The deal is, Willow has her own room downstairs and we have family accommodation upstairs. The team look after… Read more ›
A Year Missed
It’s been almost a year since I last blogged, A YEAR! It’s been a bit busy, so do excuse me, I’ve been trying to focus on life and living it. That said, a year is pretty poor. I’ve thought of… Read more ›
Night Parenting a Severely Disabled Child
When you have a baby, nights can be tough. Baby wakes lots and you don’t go into that full deep sleep because you’ve got half an ear out for baby stirring for milk. After a few months everybody gets into… Read more ›
Willow Waves
Coincidence. That’s what we thought it was when she lifted her arms for both the hello and the goodbye song during her second Music With Mummy class with the fantastic Ann-Marie. I mentioned it to her physio, who waved goodbye… Read more ›
Our Baby now Weaned from Phenobarbital
Phenobarbital (phenobarb) is a seizure control drug. As the name suggests it’s a barbiturate, given to babies because it’s an old tried and tested drug, the side effects are all known thanks to it’s 50+ years in use. W was… Read more ›
Reflecting on a year of being a special parent
This time last year I was probably having a moan about being heavily pregnant in the heat and waddling around after an almost 2 year old. We knew there were tough times ahead with a toddler and a newborn, no… Read more ›